Crohn’s Disease and Children

Our nine-year old son first developed unusual symptoms just before he turned four.  Between his 4th and 5th birthday, he had:

Here’s an excerpt from an email I received yesterday as a member of CCFA, Crohn’s and Colitis Foundation of America:

Through the eyes of a 21-year-old Crohn’s Disease sufferer:

Have you ever felt my pain?

Have you ever felt this hurt?

Have you ever wiped away my tears?

Have you ever measured the pains worth?

Have you ever sat in front of your food and prayed for it not to hurt?

Have you looked past the pupils to the thoughts array?

Have you ever tasted the smell of your favorite foods, for it to be taken away?

Have you ever just wanted the pain to go away?

Have you ever wished you could go back, to when there was no pain?

Have you ever hated the comments some have made?

Have you ever been afraid to eat, and ask yourself why?

Have you ever heard the saying you’ll be just fine?

Have you ever had pain just to sneeze?

Have you ever met anyone with Crohn’s Disease?

From the creator of the event: By having events like this, we are trying to raise as much money as possible to help cure Crohn’s Disease & Ulcerative Colitis.

Thank you for reading this and following jeffnoel.com – Make it a great day.  Enjoy your health.

Published by jeff noel

Retired Disney Institute Keynote Speaker and Prolific Blogger. Five daily, differently-themed personal blogs (about life's 5 big choices) on five different sites.

3 replies on “Crohn’s Disease and Children”

  1. Jeff, my mother had Crohn’s disease. It was a major contributor to her suffering in her final years. As you know I read your blogs most everyday and I wonder if you are working towards a way to raise money for research through your blogs, tweets, etc? Your reader base is getting so big, is there a way that can help in raising money? I have never read a blog that asks for donations. Just curious.

  2. Donna, several things:
    1. Thank you for sharing your experience with Crohn’s. It’s an obscure disease.
    2. Thank you for your concern. Very touching. Seriously.
    3. Thank you for your loyal following.
    Rather than form a non-profit, or work for a non-profit, I’m trying a radical approach (imagine that, lol). A for-profit business in which to help raise enough money to find a cure. I have no need for a lot of money. Our lifestyle is pretty simple. But it inspires me to think that there’s a purpose in life that would allow our son to live a different life with a cure. As well as the other 1.4 million known cases of IBD.
    Thank you, thank you, thank you. 🙂

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